Monday, September 24, 2018

Chemo day

First of all let me say I’m posting from my phone so there may be a lot of typos/autocorrects in here.

Today was a treatment day. I just got home about 20 min ago and am exhausted. Really wiped out. I should probably just let myself sleep but then worry I won’t be able to sleep tonight.  So I’ll post this and then probably crash. 😴

Lots of interesting things today. But first...a little backstory.
You know how I mentioned that I ended up in the hospital after my last treatment?  Well, I may have left out that.part of the reason was that I was having chest pains. My heart was having some spasms. Yeah.
Today I found out that the pump (the dreaded pump of 5FU) can cause that to happen...and can actually cause a heart attack!  Needless to say, after having those spasms last time, I will no longer be receiving the 5FU. And yes, that means NO PUMP!!!  I feel like it’s a bit of a double edged sword. On the one hand: no pump!!  On the other hand: no 5FU helping to stop this damn cancer from spreading. (Although technically it’s supposed to help keep the cancer from metastisizing and look at how THAT turned out)
So then ben and I were talking with the nurses about how I tend to react to drugs when very few people react. I think the nurse said maybe 7%?  I reacted to one of the chemo meds 10 years ago and also had a reaction to Neulasta (which the nurses were like “really? Neulasta?  That’s crazy”). I got starred on all my “pre-meds”, had just started eating lunch and all-of-a-sudden didn’t feel right. Chest started tightening, breathing got difficult, and I started to get super HOT.  My face literally turns Red. I looked and ben and said “go get Deb (my amazing nurse whom I adore)..somethings wrong”. Yep...I reacted to one of the pre-meds.
So gthey stop the meds, push fluids, get Benadryl going and call the oncologist in. I get a quick check and they cross that med off the list from now on and add it to my growing “she can’t have that” list. 🤦🏼‍♀️  Fortunately I reacted to a PREmed so I could still get treated.
And that explains why I’m so freaking tired. Benadryl and drug reactions will do that to a girl.

Luckily, I “filled my bucket” this past weekend with all kinds of awesomeness. The Aware run/walk Saturday morning (fundraiser for cancer patients) was just amazing. I had a great group of friends and family (all 3 boys 😍)who came out and ran/walked in support of me (complete with 2 legit 2 quit T-shirts!), then got to watch charlie play flag football. We were surprised by the best group of guys Saturday afternoon/evening when bens high school/college friends showed up. I love them so much!!! Sunday tyler and Sammy both played baseball and it was a beautiful day to sit outside and cheer them on. Pretty much a perfect weekend.
And then!  Yeah...more!  My mom and Rhonda sat with me during treatment (even tho I slept for a bit of it), and When I got home ben had set up the bed, gotten me water, vacuumed the house, had the remote and books set out...so all I had to do was come home and climb in bed. Which puts me where I’m at right now.

I know I have cancer and that sucks pretty hard. But also...I’m one lucky girl. ❤️

1 comment:

  1. It was great seeing you this weekend and am glad you don’t have to have the f**’n pump and they figured out that. Hope you get some rest and your always on my thoughts!

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